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What does it do?
This product is used primarily in the treatment of Multiple Sclerosis and Crohn's Disease. It affects the actions of the body's immune system, but its exact mechanism is unknown.
Last text update: 2010-12-12
Last data update: 2012-01-14
This product has a black box warning relating to the increased risk of progressive multifocal leukoencephalopathy (PML).
Usage:
Tysabri is most commonly used to treat the conditions below, together with the percentage of all people taking the medication for the particular condition.
| Disease/Condition | % |
|---|
| Multiple Sclerosis | 100% |
General Information:
- 8.4
- Tysabri Average Satisfaction Score
- 97% of patients are at least somewhat satisfied with Tysabri.
MediGuard regularly polls our more than 570 users taking Tysabri (or similar drugs with the same active ingredient(s)) using the Treatment Satisfaction Questionnaire for Medications (TSQM). This feedback is continuously updated for the benefit of the MediGuard community. To request scores for specific patient subgroups, please contact research@mediguard.org.
Comments
Global Patient Feedback for Tysabri
Please see our forum guidelines.
Took Tysabri for a total of 12 times. Initially, thought it may be working for me. I seemed stronger, but after a few infusions, started getting infections. Impetigo,Staph Aureus, &sinus infections. My arms&legs got weaker&was fatigued more often than before. At last infusion was not able to walk had to use WC. Coming off Tysabri was rough. In hospital 4 times&suffered 2 flare ups, respiratory problems including pneumonia & cellulitis. Later blood clots. Benefits did not outweigh risks for me.
- 48 year old – Source: MediGuard
- Posted: 2012-01-10 13:43:51
I have been on Tysabri since May of 2008 I have only had one flare while on this medication. It is the best MS drug I have ever been on. If I can keep up my quality of life the way Tysabri has allowed me to It is worth the small risk of PML.
- 47 year old – Source: MediGuard
- Posted: 2011-10-08 16:39:43
I was on Tysabri for 5+ yrs. I started w/ a cane & now use a walker & lost all stregth on my right side(use to be my stronger side). I had 2 excaserbations while on Tysabri. To me I could have had the same results from IV steroids every 3 months. My neuro wanted my to stay w/ this since I had no side effects. I have since stopped Tysabri & started on Gilenya(today). Good luck to all on your journey to a better today!
- 48 year old – Source: MediGuard
- Posted: 2011-03-16 18:12:48
