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Tysabri - monitoring more than 580 patients
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Your Details

What does it do?

This product is used primarily in the treatment of Multiple Sclerosis and Crohn's Disease. It affects the actions of the body's immune system, but its exact mechanism is unknown.

Last text update: 2010-12-12

Last data update: 2012-05-18

Black Box Warning:
This product has a black box warning relating to the increased risk of progressive multifocal leukoencephalopathy (PML).

Usage:

Tysabri (along with other drugs with the same active ingredient(s)) is most commonly used to treat the conditions below. Please note that some patients may be using this medication for more than one condition.

Disease/Condition %
Multiple Sclerosis 100%

General Information:

7.9
Tysabri Average Satisfaction Score
  • 85% of patients are at least somewhat satisfied with Tysabri.
  • 14% of patients wish they were told more before they started taking Tysabri

MediGuard regularly polls our more than 580 users taking Tysabri (or similar drugs with the same active ingredient(s)) using the Treatment Satisfaction Questionnaire for Medications (TSQM). This feedback is continuously updated for the benefit of the MediGuard community. To request scores for specific patient subgroups, please contact research@mediguard.org.

Comments

Global Patient Feedback for Tysabri

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I have been on tysabri close to 3 years now. Doing well on it. As a matter of fact I now get infusions every 6 weeks inplace of every 4 weeks. My MRI come back with no new plaques, my only problem seems to be fatigue. I'm sure part of that is MS but part could be age. You just have to remain optimistic.

  • 48 year old Female – Source: MediGuard
  • Posted: 2012-04-02 11:09:11
Reply

Took Tysabri for a total of 12 times. Initially, thought it may be working for me. I seemed stronger, but after a few infusions, started getting infections. Impetigo,Staph Aureus, &sinus infections. My arms&legs got weaker&was fatigued more often than before. At last infusion was not able to walk had to use WC. Coming off Tysabri was rough. In hospital 4 times&suffered 2 flare ups, respiratory problems including pneumonia & cellulitis. Later blood clots. Benefits did not outweigh risks for me.

  • 48 year old Male – Source: MediGuard
  • Posted: 2012-01-10 13:43:51
Reply

I have been on Tysabri since May of 2008 I have only had one flare while on this medication. It is the best MS drug I have ever been on. If I can keep up my quality of life the way Tysabri has allowed me to It is worth the small risk of PML.

  • 47 year old Male – Source: MediGuard
  • Posted: 2011-10-08 16:39:43
Reply

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